Terry L. Jones spoke to Sooner Rotary Tuesday morning and talked about his 39-year battle with Lou Gehrig’s Disease, a motor neuron disease noted by the onset of muscle weakness and atrophy. 

Diagnosed at age 27, Jones shared his fears as he began treatment with shots which contained snake venom, a treatment that helped him restore muscle use, but which strapped him with receiving injections every-other day for the next 10 years.  An avid golfer since his youth, he struggled to continue golfing.

Jones is the longest-known survivor with Lou Gehrig’s Disease, and is a successful public speaker, spiritual director of a hospice, chaplain of the Oklahoma State Senate, and an ordained Nazarene minister  as well as husband, father and grandfather.

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